PHENYLKETONURIA: PARENTAL ADJUSTMENT

Course overview

Parental reaction and adjustment to a newborn’s diagnosis of phenylketonuria (PKU) are multifactorial and extremely variable; the adjustment process continues throughout childhood because growth and development necessitate progressive shifts in treatment management. This continuing education module is designed to give the reader/learner an increased understanding of relevant research on parental adjustment to PKU, including evidence-based information on reactions that parents may have to a newborn diagnosis of PKU and factors that may intensify parental grief, and to aid in caring for the patient with this diagnosis. Readers may explore any or all of the topics. One contact hour of continuing education credit is available for those who successfully complete the post-test and evaluation form.