Neurodegenerative Disease Series: Huntingtons and Prion Disease

Course overview

This intermediate course is offered for Speech Pathologists and Occupational Therapists. Therapists are challenged by patients diagnosed with Huntington's or Prion Disease to provide appropriate therapies and work within our standard practice of care. We must know the impact these have on cognition and swallowing, the impact of medications and what therapy tools/techniques can make an impact on their cognition, swallowing and quality of life. This seminar will provide information on the diagnostic process, theories on development of the disease, symptoms that present in early stages and the changes that occur with the progression. Medications may improve quality of life for our patients but may also become ineffective. Medication protocols will be discussed as well as CAM or complimentary alternative medicine. Numerous therapy techniques and tools available will be presented with rationale for their use. Recommendations for modified diets, liquids or even NPO may not be acceptable to the patient and/or family. As therapists, we need to know what options are available and educate/inform our patients and families to allow them to make decisions that work for them. Options will be addressed as well as concerns with waivers and need for appropriate, thorough documentation.